Bioethics Center Publications – 2024
Schultz, B., Agamah, F. E., Ewuoso, C., Madden, E. B., Troyer, J., Skelton, M., & Mwaka, E. (2024). Webinar report: stakeholder perspectives on informed consent for the use of genomic data by commercial entities. Journal of Medical Ethics, 50(1), 57-61.
Nankya, H. (2024). Considerations for Community Engagement in Artificial Intelligence in Africa: A Review of Literature. The Journal of Hospital Ethics, 10(2), 85-85.
Nankya, H., Alibu, V. P., Wamala, E., Matovu, E., & Barugahare, J. (2024). Understanding of Key Considerations for Effective Community Engagement in Genetics and Genomics Research: A Qualitative Study of the Perspectives of Research Ethics Committee Members and National Research Regulators in a low Resource Setting. Journal of Empirical Research on Human Research Ethics, 19(4-5), 197-207.
Nankya, H., Wamala, E., Alibu, V. P., & Barugahare, J. (2024). Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda. BMC Medical Ethics, 25(1), 1.
Nanyonga, M. M., Kutyabami, P., Kituuka, O., & Sewankambo, N. K. (2024). Exploration of Clinical Ethics Consultation in Uganda: A case study of Uganda Cancer Institute. Research Square.
Kampi, R., Okello, C., Ochieng, J., & Mwaka, E. S. (2024). Informed consent in cancer clinical care: perspectives of healthcare professionals on information disclosure at a tertiary institution in Uganda. Plos one, 19(4), e0301586.
Nalubega, S., Kutyabami, P., Twimukye, A., Kaawa-Mafigiri, D., & Sewankambo, N. K. (2024). Practices and attitudes of herbalists regarding informed consent in Uganda: a qualitative study. BMC Medical Ethics, 25(1), 106.
Owino, R. S., Sewankambo, N. K., Kituuka, O., & Kutyabami, P. (2024). Experiences and ethical issues during shared decision-making in healthcare at rural health facilities in Uganda: An exploratory qualitative study. Research Square, rs-3.
Nabukenya, S., Kyaddondo, D., Munabi, I. G., Waitt, C., Twimukye, A., & Mwaka, E. S. (2024). The role of community engagement in promoting research participants’ understanding of pharmacogenomic research results: Perspectives of stakeholders involved in HIV/AIDS research and treatment. Plos one, 19(4), e0299081.
Nabukenya, S., Kyaddondo, D., Twimukye, A., Munabi, I. G., Waitt, C., & Mwaka, E. S. (2024). ‘It is a complex process, but it’s very important to return these results to participants’. Stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV. Research Ethics, 20(2), 363-387.
Twimukye, A., Nabukenya, S., Kawuma, A. N., Bayigga, J., Nakijoba, R., Asiimwe, S. P., … & Waitt, C. (2024). ‘Some parts of the consent form are written using complex scientific language’: community perspectives on informed consent for research with pregnant and lactating mothers in Uganda. BMC medical ethics, 25(1), 149.
Ochieng, J., Kwagala, B., Barugahare, J., Möller, M., & Moodley, K. (2024). Awareness, experiences and perceptions regarding genetic testing and the return of genetic and genomics results in a hypothetical research context among patients in Uganda: a qualitative study. Journal of Medical Ethics.
Barugahare, J., Kwagala, B., & Ochieng, J. (2024). Stakeholder’s Perspectives on Rationing COVID-19 Vaccines Amidst Scarcity: a Qualitative Study. Archives of Microbiology and Immunology, 8, 23-34.