Bioethics Center Publications – 2021
Mwaka, Erisa Sabakaki, Deborah Ekusai Sebatta, Joseph Ochieng, Ian Guyton Munabi, Godfrey Bagenda, Deborah Ainembabazi, and David Kaawa-Mafigiri. “Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study.” Global Bioethics 32, no. 1 (2021): 15-33.
Ochieng, Joseph, Betty Kwagala, John Barugahare, Erisa Mwaka, Deborah Ekusai-Sebatta, Joseph Ali, and Nelson K. Sewankambo. “Perspectives and ethical considerations for return of genetics and genomics research results: a qualitative study of genomics researchers in Uganda.” (2021).
Ochieng, Joseph, Betty Kwagala, and Nelson Sewankambo. “Collection and use of human materials during TB clinical research; a review of practices.” (2021).
Ali, Joseph, Betty Cohn, Erisa Mwaka, Juli M. Bollinger, Betty Kwagala, John Barugahare, Nelson K. Sewankambo, and Joseph Ochieng. “A scoping review of genetics and genomics research ethics policies and guidelines for Africa.” BMC Medical Ethics 22, no. 1 (2021): 1-15.
Mbalinda, Scovia Nalugo, Sabrina Bakeera-Kitaka, Derrick Lusota Amooti, Eleanor Namusoke Magongo, Philippa Musoke, and Dan Kabonge Kaye. “Ethical challenges of the healthcare transition to adult antiretroviral therapy (ART) clinics for adolescents and young people with HIV in Uganda.” BMC medical ethics 22, no. 1 (2021): 1-14.
Kaye, Dan Kabonge. “Motivation to participate and experiences of the informed consent process for randomized clinical trials in emergency obstetric care in Uganda.” BMC Medical Ethics 22, no. 1 (2021): 1-12.
Nichol, Ariadne A., Erisa S. Mwaka, and Valerie A. Luyckx. “Ethics in Research: Relevance for Nephrology.” In Seminars in Nephrology, vol. 41, no. 3, pp. 272-281. WB Saunders, 2021.
Kamuya, Dorcas, Mary A. Bitta, Adamu Addissie, Violet Naanyu, Andrea Palk, Erisa Mwaka, Eunice Kamaara et al. “The Africa Ethics Working Group (AEWG): a model of collaboration for psychiatric genomic research in Africa.” Wellcome Open Research 6, no. 190 (2021): 190.
Wolde, Telahun Teka, Rosemary Musesengwa, Andrea Palk, S. Mwaka Erisa, Violet Naanyu, Adamu Addissie, and Getnet Tadele. “Ethics review of multicenter neuro-psychiatric & neurodevelopmental genetics research protocols: a case study of the NeuroDev & NeuroGap-Psychosis studies.” Wellcome Open Research 6, no. 193 (2021): 193.